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Natacha ERNWEIN is a PhD candidate at LabSIC. She is conducting her doctoral research under the supervision of Yanita ANDONOVA and the co-supervision of Nicolas PEIROT. Her dissertation focuses on the organization of digital resistance on collaborative health platforms.
Indeed, while platformization is not a new phenomenon, it is accompanied by a growing willingness among users to resist the capture of their data, in a context where datafication and the commodification of data are becoming increasingly prevalent, particularly in the field of health. This is especially true for collaborative platforms, which often make patient participation conditional upon the collection of personal data, despite existing regulations. The aim of this research is therefore to understand how these forms of digital resistance are organized.